Patients Helping Patients

Often dystonia and Parkinson's Disease patients feel isolate and alone. The Foundation believes that a strong support network is critical for patients and their families. To connect others who have been touched by these movement disorders, simply browse the blogs below.

The Untold Stories of Dystonia (dystonia)


Amy P. Smith (torsian dystonia)


Battery Powered Person (DBS)


Bekah the Ballerina (early-onset dystonia)


Blissful Blog (dystonia)


Brand New Day (dystonia)


Childhood Onset Dystonia (early-onset dystonia)


Chronicles of a Dystonia Muse (early-onset generalized dystonia)


Confessions of a Girl in Hiding


Dystonia & Functional Movement Disorder Sufferer’s Blog (multiple forms)


Dystonia and Me (facial dystonia)


Dystonia Daughter (father has dystonia)


Dystonia Girl (dystonia)


Dystonia. Living in the Eye of the Tiger


Dystonia Mama (dystonia)


Dystonia the Devil


Dystonie Treff Online (hemi-dystonia)


Feeling Twisty (generalized dystonia)


Homens De Bem (writer's cramp)


In The Blink Of An Eye (blepharospasm)


La Dystonie (dystonia - translated in English and French)


Little Writings (dystonia)


Living With Dystonia (cervical dystonia)


Living with Dystonia (dystonia)


Matt Lawrence (early-onset)


Musician's Focal Dystonia (musician's dystonia)


Musings of a Bionic Distance Runner (dystonia)


My Life with a Movement Disorder (dystonia)


My Life with Dystonia (dystonia)


My Life with Dystonia (dystonia)


Of Storms and Peace (dystonia)


Pretty Pink Wings (dystonia)


Quest of the Nocturnal Baker (generalized dystonia)


Rainy Day Friend (dopa responsive dystonia)



Run Carrie Run! (dystonia)


Stronger than Dystonia (lingual dystonia)


Studio Foxhaven (dystonia & Parkinson’s)


The Jolly Runner (generalized dystonia)


Walking Forward



A Soft Voice In A Noisy World – Making the Best of A Life with Parkinson’s Disease


Aging and Parkinson’s and Me


Kaitlyn Roland: A Yogini With A PhD And A Passion To Help People Live Well With Parkinson’s Disease


Coffee With Pokie  (active)


Defeat Parkinsons


Disability – a dialogue with Parkinson’s and other diseases


It Is What It Is! Zen and living with Parkinson’s Disease


LIM Yoga Blog


Living Alone With Parkinson’s “Works4Me” (alternative approaches)


Walking the UK in a Straight Line for Parkinson’s


My Life with Parkinson’s disease


On & Off:  The Alaska Parkinson’s Rag


Parkinson’s Humor


Parkinson’s in Balance and The Perky Parkie


Parkinson’s Journey…you are not alone


Positively Parkinson’s


Recently Diagnosed Blog


Shake, Rattle and Roll


Shakin’ Not Stirred: Finding Perseverance Through Parkinson’s


Shaky Paws Grampa


Studio Foxhaven  (dystonia & Parkinson’s)


The Long Straight Walk


The PD Gardener


Vow For Parkinson


Walking My Path With Parkinson’s