The idea
What is dystonia?
How to promote for Dystonia Call for Action Day before June 18th
How to participate on June 18th
How you can answer the "Dystonia Call for Action" TODAY
The Idea:
To create a 24-hour social media campaign to create buzz and awareness about dystonia all over the online world! This campaign will take place on June 18th in conjunction with the proclamation made by New York City's Mayor Michael Bloomberg's, that June 18th is "Dystonia Call for Action Day".
What is Dystonia?
Dystonia is a neurological muscle disorder that causes uncontrollable, painful spasms in one or more parts of the body. While not widely known, dystonia affects an estimated 500,000 people in North America alone--more than muscular dystrophy, Huntington's disease and Lou Gehrig's disease combined. Different forms of the disease affect the face, neck, throat, eyelids, arms, legs or torso. This devastating disease can appear in children and adults alike.
What causes it?
There is no real answer to this puzzling question. There is no definitive test or diagnosis for this disease, nor is there a known cure. Dystonia is under-researched. As hundreds of thousands of adults and children suffer from symptoms related to the disease, a large majority of patients never receive a proper diagnosis. Yet dystonia is not well known by the public or the general medical population.
Is there a cure?
Although remarkable progress has been made in the study of dystonia in the last few years, there is not a known cure for it yet. Dystonia affects more people than Muscular Dystrophy, Huntington's disease or Lou Gehrig's disease combined, yet awareness of dystonia is limited. More research, treatments and education about its diagnosis are needed before a cure can be found.
How to participate on June 18th:
FACEBOOK:
1. Post on your Facebook, wherever you are, at work, at home, or on the road...use your computers, smartphones, tablets, etc. for "Dystonia Call for Action Day".
POST:
I call for Dystonia Action, TODAY and everyday!
Copy and paste the above phrase to your facebook and even post it on your friends pages!
This is YOUR chance to CALL FOR DYSTONIA ACTION worldwide!
MOST IMPORTANTLY! Share and "like" other "Dystonia Call for Action" Facebook posts that you see from your friends, ESPESCIALLY on Bachmann-Strauss's Facebook page (www.facebook.com/bachmannstrauss): Keep the momentum going!
TWITTER:
1. Tweet your "Dystonia Call for Action": NO matter what time, NO matter your location... tweet on June 18th from the below instructions to get our #call4action trending on Twitter for "Dystonia Call for Action Day".
TWEET:
I call for Dystonia Action, TODAY and everyday! #call4action http://tinyurl.com/7m9bdzu
Copy and paste the above tweet to your twitter!
This is YOUR chance to CALL FOR DYSTONIA ACTION worldwide!
MOST IMPORTANTLY! Retweet other #call4action "Dystonia Call for Action" tweets that you see: ESPESCIALLY retweet @BachmannStrauss tweets all day on June 18th. Keep the momentum going!
WE ONLY HAVE ONE DAY TO MAKE AN IMPACT. LET'S MAKE A LASTING IMPRESSION AND CALL FOR ACTION AGAINST DYSTONIA!
"How You Can Answer The Call for Dystonia Action Today - And Everyday"
- Tweet/Retweet, Post/Repost.
- Talk to 5 People Today about Dystonia & another 5 People Tomorrow
- Volunteer at The Bachmann-Strauss Foundation, call 212-682-9900
- Make a Donation
- Join the The Young Leadership Council
- Stay Informed
- Become an Advocate
- Participate in Jake's Ride
- Support Our Marathon Team
- Tell Your Doctor About Dystonia: Even medical professionals may be unfamiliar with this disease
- Follow Us on Twitter and Facebook
If you have any questions regarding "Dystonia Call for Action Day" please contact Christina Pepi at cpepi@bsdpf.org.