Blogging for Dystonia:
Chronicles of a Dystonia Muse
The decidedly non-frivolous musings of a battle-clever Dystonia damsel - less in distress - seeking a bit of comic relief as she airs her neurological dirty laundry.
"This is what it's like to have cervical dystonia - the good, the bad, and the ugly. Actually, there's nothing good about it."
Prime Time Dystonia
Iintroduces To Know, a educational resource designed to improve over-all comprehension of dystonia, increasing patient satisfaction and managment of symptoms.
"Tweeting tips for life... We are prime time Dystonia & Dystonia Living."
A disability advocate who is passionate about helping others live productive lives. He has had Dystonia, a neurological disorder that affects approximately 300,000 people in North America, since age 13.
Spasmodic Torticollis Recovered By Acupuncture,Video on YouTube.com
By Arthur Yin Fan
The website of NEUROSURGERY®, the official journal of the Congress of Neurological Surgeons.
Dystonia: Isolation Through Ignorance
By Anna Olden
A survey among Britain's 40,000 sufferers from dystonia - a serious neurological movement disorder causing painful muscle spasms - has shown a widespread ignorance about their condition among healthcare professionals and a lack of understanding amongst the public.
Wellsphere’s mission is to help millions of people live healthier, happier lives by connecting them with the knowledge, people and tools they need to manage and improve their health.
Days of My Life... with Generalized Dystonia
Michael Hyun Park
Blogging for Parkinson’s Disease:
The Voices of Parkinson’s Disease
The New York Times
By Tara Parker-Pope
Parkinson's Disease- The Journey to a Cure
The blog of a Team Fox member, who works as part of the volunteer fundraising arm of The Michael J. Fox Foundation for Parkinson's Research. The purpose of this blog is to help anyone that is directly or indirectly affected by Parkinson's Disease. The ultimate aim of this blog is to be a part of finding a cure and better treatments.
Bibmomma's Blog- Reflections of an early onset Parkinson's patient.
"These are the thoughts and feelings of a Parkie…. a Texan who has Parkinson’s Disease and happens to be a mom, librarian, bookseller, knitter, photographer and a great cook! I am a life member of the American Library Association and a long-time advocate of Intellectual Freedom. I am also a strong supporter of Emily’s List."
About Parkinson's Disease
Natural Healthy Concepts
"Parkinsons Recovery is a clearinghouse of information about treatments and therapies for persons diagnosed with Parkinson’s disease. Ask us your questions. Visit the Parkinsons Recovery home page. Download Parkinsons Recovery radio programs or listen in live."
Day by Day with a Movement Disorder
"I was diagnosed with Parkinson's Disease and Peripheral Neuropathy in 2006, but my symptoms seemed to take a turn in a different direction in late 2007. The current diagnosis is ESSENTIAL MYOCLONUS. Share my journey - coping with the testing, the medicines, nutrition, digestion problems, exercise, the emotions, uncertain diagnoses and no telling what else!"
"I’m a 60 year old shaky accordionist and aspiring writer who was diagnosed with Parkinson’s Disease 14 years ago.
I’ve been employed since I was 15, including 10 years since diagnosis.
I’ve had an unusual career and education combination as a Certified Public Accountant with a Masters degree in Social Work. I’ve been accused of being a sensitive accountant and a logical social worker.
I’ve been happily married to the same man, Tom Kelsall, for 36 years.
I’ve lived in 8 cities in the US and Canada and have finally settled in Colorado for the past 17 years.
We adopted our dog Oreo, an English Springer Spaniel, from the rescue during the week of 9/11.
I am more preoccupied with losing height than gaining weight.
I like bright colors and loathe beige.
I love California chardonnay and hate beer.
I enjoy playing jazz on the accordion, and detest polkas.
I prefer to spend money on experiences such as theatre and traveling, rather than fancy clothes and cars."
The Value of Openness
"PatientsLikeMe is the leading online community for people with life-changing conditions. Patients embrace the open sharing of personal health data because they believe that information can change the course of their disease. With a focus on patients and research, our blog reflects knowledge resulting from the shared real-world experiences of our community. Welcome to the genesis of patient-led research."
Parky Bill's Parkinson Place
"My Life as a Guy with Parkinson's Disease, and the OTHER Crap That Annoys Me!!!"