What does being a caregiver involve?

As stated in the question above, Parkinson’s disease affects more than person living with it and very often one person –a spouse, parent or child- will take the role of primary care taker or carepartner. The degree and span of responsibilities will depend on the individual case and the stage of the disease, making it a dynamic changing relationship. It may involve managing medications, taking your loved one to doctors appointments, making financial decisions, or coping with a loved one with dementia including difficulties with memory and slowed thinking or communication. It is important to have open communication with your loved one living with Parkinson’s disease, to address life planning decisions early, to not let the disease define your life, to take care of yourself, and to educate yourself and the community in Parkinson’s disease.