How do I find support?

As with the onset of any long-term chronic medical condition, some people who develop dystonia may go through an initial period of depression, embarrassment and anger – or sometimes relief that there is an explanation for their symptoms. Most people manage to develop effective strategies for coping with the challenges that their condition brings. Appropriate diagnosis, successful treatments to lessen symptoms, effective pain control and the acquisition of sensory ‘tricks’ all help to ameliorate social situations.


Many patients obtain valuable information and comfort by joining support groups. Many movement disorders centers offer support groups, and you should ask your neurologist for information on your closest support group. In addition, support groups provide a great forum for patients to share their own experience with the disease.